Landon and Logan continue to have 1-2 doctor's appointments a week although the next month or so is looking much better now that the need for follow up appointments has become less frequent. Whereas immediately following discharge, they were seeing a few different doctors every 2 weeks or so they are now only requiring monthly or bi-monthly follow-ups. We received good news at Landon's last nephrology appointment in that his renal scan looked great and his blood pressure has normalized. Therefore, we have a follow up in a month and if his BP remains stable, the doctor is hoping to be able to discontinue the need for his daily medication amlodipine).
Logan remains on supplemental oxygen (1/8L flow) but is making good strides toward being weaned off it. An 1/8L flow is about as minimal a flow as they doctors will prescribe (his regulator is set to go down to 1/32 but the docs say when the settings get this low the difference is inconsequential. His sats usually sit anywhere from 97-100 while on the oxygen but the few times we've taken his cannula out of his nose his sats typically drop and tend to yo-yo between the low 90's and high 80's. He is growing at a considerable rate though, as are his lungs, and eventually the growth of new healthy tissue will eradicate the lung disease he incurred as a result of his prematurity and being on the vent for the first 8 weeks of his life. Therefore, we are hoping and expecting that he should only need the oxygen for another month or so.
Now that the boys' chronological age is 23+ weeks (almost 6 mos.) we have started them both on rice cereal (only once a day for now), what an adventure that has been!! It is quite a task trying to feed rice cereal to babies who really only behave like 8 week olds (that is their adjusted age). Needless to say it usually requires both Steve and I as they cannot sit up on their own (or even sit supported in a bumbo since their head control is still lacking) and they both seem quite confused to receive a spoon instead of the nipple to which they have become accustomed! They really struggle to understand the concept and it is incredibly difficult with Logan as he is a fierce eater and just doesn't have the patience to sit and wait for the spoon and when it arrives he only finds minimal sustinence for his liking, whereas with his bottle he can gulp down as much as he wants as quickly as he wants (before mommy or daddy have to pull out the bottle in order to pace him). We will keep them on the rice cereal for another few weeks and then slowly introduce them to regular baby food, beginning with veggies. I must admit, I'm extremely excited for that as I'm quite certain they will probably never acquire a liking to the taste of the rice cereal (it's quite bland)!!
They are both receiving physical therapy once a week through the State of NJ Early Intervention Svcs. and although they've only had a few sessions, I feel that it has already been of great benefit to them. The therapist has thus far been focusing primarily on improving their head control and encouraging them to reach out and hold toys when placed in front of them. Logan, being the bigger and stronger of the two, has much better head control and can lift his head somewhat during tummy time as well but Landon makes attempts to reach and hold toys whereas Logan does not yet (he tends to keep his fists clenched tightly closed). Each of them possess their own strengths and weaknesses and I find that so endearing.
I have so much more to say but am absolutely spent from the events of the last 48 hours so unfortunately I'll have to wait until my next post (which hopefully won't be in a month's time like this one was)!